Publications
Transforming Kidney Supportive Care through Research and Implementation
View a selection of publications from our team members, including past and present members of the Coalition's Executive Committee.
2025
Scherer, J. S., Wu, W., Lyu, C., Goldfeld, K. S., Brody, A. A., Chodosh, J., & Charytan, D. (2025). A Pilot Randomized Controlled Study of Integrated Kidney Palliative Care and Chronic Kidney Disease Care Implemented in a Safety-Net Hospital: Protocol for a pilot study of feasibility of a randomized controlled trial. Contemporary Clinical Trials Communications, 101439.
2024
Laue, K., Schultz, M., Talbot-Montgomery, E., Garrick, A., Java, A., Corbett, C., ... & Hardesty, V. (2024). Show Me CKDintercept Initiative: A Collective Impact Approach to Improve Population Health in Missouri. Mayo Clinic Proceedings: Innovations, Quality & Outcomes, 8(1), 82-96.
Ernecoff, N. C., Robinson, M. T., Motter, E. M., Bursic, A. E., Lagnese, K., Taylor, R., ... & Schell, J. O. (2024). Concurrent Hospice and Dialysis Care: Considerations for Implementation. Journal of general internal medicine, 39(5), 798-807.
Umberfield, E. E., Fields, M. C., Lenko, R., Morgan, T. P., Adair, E. S., Fromme, E. K., ... & Hickman, S. E. (2024). An Integrative Review of the State of POLST Science: What Do We Know and Where Do We Go?. Journal of the American Medical Directors Association.
Ernecoff, N. C., Kurtz, E. C., Pearson, E. M., Grimes, T. H., Aldous, A., Lupu, D. E., & Schell, J. O. (2024). Advanced Care Planning in Chronic Kidney Disease: Qualitative Impact of the MY WAY Intervention. Journal of Pain and Symptom Management.
de Sosa, G. M. R., Thamer, M., Anderson, E., Unruh, M., & Lupu, D. (2024). Successful Implementation of Advance Care Planning in National Dialysis Organizations: The HIGHWay Project (RP111). Journal of Pain and Symptom Management, 67(5), e797-e798.
Weiner, D. E., Delgado, C., Flythe, J. E., Forfang, D. L., Manley, T., McGonigal, L. J., ... & Wilkie, C. (2024). Patient-centered quality measures for dialysis care: a report of a Kidney disease Outcomes quality initiative (KDOQI) scientific workshop sponsored by the National Kidney Foundation. American Journal of Kidney Diseases, 83(5), 636-647.
Butler, C. R., Nalatwad, A., Cheung, K. L., Hannan, M. F., Hladek, M. D., Johnston, E. A., ... & McAdams-DeMarco, M. (2024). Establishing Research Priorities in Geriatric Nephrology: A Delphi Study of Clinicians and Researchers. American Journal of Kidney Diseases.
Hong, J., Chu, N. M., Cockey, S. G., Long, J., Cronin, N., Ghildayal, N., ... & McAdams-DeMarco, M. A. (2024). Frailty, but not cognitive impairment, improves mortality risk prediction among those with chronic kidney disease—a nationally representative study. BMC nephrology, 25(1), 177.
Fisher, M. C., Chen, X., Crews, D. C., DeGroot, L., Eneanya, N. D., Ghildayal, N., ... & McAdams-DeMarco, M. A. (2024). Advance care planning and palliative care consultation in kidney transplantation. American Journal of Kidney Diseases, 83(3), 318-328.
Davison, S. N., Pommer, W., Brown, M. A., Douglas, C. A., Gelfand, S. L., Gueco, I. P., ... & Brennan, F. P. (2024). Conservative kidney management and kidney supportive care: core components of integrated care for people with kidney failure. Kidney international, 105(1), 35-45.
2023
Moss, A. H., Harbert, G., Aldous, A., Anderson, E., Nicklas, A., & Lupu, D. E. (2023). Pathways Project Pragmatic Lessons Learned: Integrating Supportive Care Best Practices into Real-World Kidney Care. Kidney360, 10-34067.
Moss, A. H. (2023). Conservative/Palliative Treatment and End-of-Life Care in Chronic Kidney Disease. In Management of Chronic Kidney Disease: A Clinician’s Guide (pp. 535-546). Cham: Springer International Publishing.
Johansen, K. L., Chertow, G. M., Gilbertson, D. T., Ishani, A., Israni, A., Ku, E., ... & Wetmore, J. B. (2023). US renal data system 2022 annual data report: epidemiology of kidney disease in the United States. American journal of kidney diseases: the official journal of the National Kidney Foundation, 81(3 Suppl1), A8.
Moss, A. H., Lupu, D., Corbett, C. M., & Silberzweig, J. I. (2023). Commitment to Practice Change Through Case-Based Learning to Improve Palliative Care for Older Patients with Kidney Failure: FR-PO889. Journal of the American Society of Nephrology, 34(11S), 651.
Scherer, J. S., Bieber, B., de Pinho, N. A., Masud, T., Robinson, B., Pecoits-Filho, R., ... & Charytan, D. M. (2023). Conservative kidney management practice patterns and resources in the United States: a cross-sectional analysis of CKDopps (Chronic Kidney Disease Outcomes and Practice Patterns Study) Data. Kidney medicine, 5(11), 100726.
Moss, A. H. (2023). Should the Incapacitated Patient’s Prior Refusal of Dialysis Be Honored? The Value of a Systematic Approach to Gathering Data in an Ethics Consultation. The American Journal of Bioethics, 23(8), 90-91.
Moss, A. H., Lupu, D., Corbett, C. M., Pan, C. X., Shalev, D., Silberzweig, J. I., ... & Cukor, D. (2023). Kidney SCHOLAR Teams: A Collaboration to Improve Palliative Care for New York City Patients with Kidney Disease (SA312A). Journal of Pain and Symptom Management, 65(3), e302.
2022
Tamura, M. K., Holdsworth, L., Stedman, M., Aldous, A., Asch, S. M., Han, J., ... & Lupu, D. E. (2022). Implementation and effectiveness of a learning collaborative to improve palliative care for seriously ill hemodialysis patients. Clinical Journal of the American Society of Nephrology, 17(10), 1495-1505.
Hemmat, V., & Corbett, C. (2022). Palliative care for nephrology patients in the intensive care unit. Critical Care Nursing Clinics, 34(4), 467-479.
Rodriguez de Sosa, G., Nicklas, A., Thamer, M., Anderson, E., Reddy, N., Stevelos, J., ... & Lupu, D. E. (2022). Implementing advance care planning for dialysis patients: HIGHway project. BMC palliative care, 21(1), 129.
Moss, A., & Lupu, D. (2022). No Surprise: The Surprise Question Works in an Ethnically Diverse Dialysis Patient Population to Identify Seriously Ill (S507). Journal of Pain and Symptom Management, 63(5), 908-909.
Gelfand, S. L., Fitchett, G., & Moss, A. H. (2022). Recognizing the Potential Importance of Religion and Spirituality in the Care of Black Americans with Kidney Failure. Journal of the American Society of Nephrology, 33(7), 1255-1257.
Haug, K., Buffington, A., Zelenski, A., Hanlon, B. M., Stalter, L., Kwekkeboom, K. L., ... & Schwarze, M. (2022). Best Case/Worst Case: protocol for a multisite randomised clinical trial of a scenario planning intervention for patients with kidney failure. BMJ open, 12(11), e067258.
Lupu, D. E., Aldous, A., Anderson, E., Schell, J. O., Groninger, H., Sherman, M. J., ... & Simmens, S. J. (2022). Advance care planning coaching in CKD clinics: a pragmatic randomized clinical trial. American Journal of Kidney Diseases, 79(5), 699-708.
Saeed, F., Moss, A. H., Duberstein, P. R., & Fiscella, K. A. (2022). Enabling patient choice: the “deciding not to decide” option for older adults facing dialysis decisions. Journal of the American Society of Nephrology, 33(5), 880-882.
Moss, A., Lupu, D., Saeed, F., & Corbett, C. (2022). The Dialysis De Facto Default Is Not for Everyone: The Palliative Care Clinician's Role for Older Patients with Kidney Failure and Comorbidities (TH137). Journal of Pain and Symptom Management, 63(5), 792.
Scherer, J. S., Rau, M. E., Krieger, A., Xia, Y., Zhong, H., Brody, A., ... & Chodosh, J. (2022). A pilot randomized controlled trial of integrated palliative care and nephrology care. Kidney360, 3(10), 1720-1729.
2021
Corbett, C. M., & Moss, A. H. (2021). Exploring the Evidence. Barriers and Facilitators to Active Medical Management without Dialysis. Nephrology Nursing Journal, 48(1).
Moss, A. H., & Navia, R. O. (2021). Should we recommend dialysis for older patients with kidney failure and dementia?. Journal of the American Geriatrics Society, 69(4).
Lupu, D., & Moss, A. H. (2021, November). The role of kidney supportive care and active medical management without dialysis in supporting well-being in kidney care. In Seminars in Nephrology (Vol. 41, No. 6, pp. 580-591).
Diamond, L. H., Armistead, N. C., Lupu, D. E., Moss, A. H., Anderson, E., Harbert, G., ... & Stevelos, J. (2021). Recommendations for public policy changes to improve supportive care for seriously ill patients with kidney disease. American Journal of Kidney Diseases, 77(4), 529-537.
Moss, A., Lupu, D., Harbert, G., Aldous, A., Anderson, E., & Nicklas, A. (2021). Results of Intervention to Increase Goals-of-Care Conversations in Dialysis Centers (SCI950). Journal of Pain and Symptom Management, 61(3), 697.
Lupu, D. E., Aldous, A., Harbert, G., Tamura, M. K., Holdsworth, L. M., Nicklas, A., ... & Moss, A. H. (2021). Pathways project: development of a multimodal innovation to improve kidney supportive care in dialysis centers. Kidney360, 2(1), 114-128.
Bristol, A. A., Chaudhry, S., Assis, D., Wright, R., Moriyama, D., Harwood, K., ... & Scherer, J. S. (2021). An exploratory qualitative study of patient and caregiver perspectives of ambulatory kidney palliative care. American Journal of Hospice and Palliative Medicine®, 38(10), 1242-1249.
Scherer, J. S., Milazzo, K. C., Hebert, P. L., Engelberg, R. A., Lavallee, D. C., Vig, E. K., ... & O’Hare, A. M. (2021). Association between self-reported importance of religious or spiritual beliefs and end-of-life care preferences among people receiving dialysis. JAMA Network Open, 4(8), e2119355-e2119355.
Kalantar-Zadeh, K., Henner, D., Atkinson, R., Molony, D., Agarwal, A., Rankin, L. I., ... & Norris, K. C. (2021). Inpatient Dialysis Services: Nephrologist Leadership and Improving Quality and Safety. American journal of kidney diseases: the official journal of the National Kidney Foundation, 78(2), 268-271.
2020
Moss, A. H., Lupu, D. E., & Diamond, L. (Eds.). (2020). Palliative care in nephrology. Oxford University Press.
Moss, A. H., Lupu, D., Harbert, G., Callahan, M. B., & Hanson, C. (2020). Closing the Gap on the Palliative Care Needs of Patients with Kidney Disease: Innovations from the Pathways Project (TH306). Journal of Pain and Symptom Management, 59(2), 406-407.
Gelfand, S. L., Scherer, J. S., & Koncicki, H. M. (2020). Kidney supportive care: core curriculum 2020. American Journal of Kidney Diseases, 75(5), 793-806.
Moss, A. H., Aldous, A., Harbert, G., Nicklas, A. C., Diamond, L., Armistead, N., & Lupu, D. (2020). Improving Supportive Care of Seriously Ill Dialysis Patients with Goals-of-Care Conversations: FR-OR29. Journal of the American Society of Nephrology, 31(10S), 24.
Scherer, J. S., Harwood, K., Frydman, J. L., Moriyama, D., Brody, A. A., Modersitzki, F., ... & Chodosh, J. (2020). A descriptive analysis of an ambulatory kidney palliative care program. Journal of palliative medicine, 23(2), 259-263.
Butler, C. R., & Moss, A. H. (2020). Ethical Issues in the Supportive Care of Patients With Advanced Kidney Disease. Palliative Care in Nephrology, 239.
Rubenzik, T., & Moss, A. H. (2020). Palliative Considerations for the Patient With Acute Kidney Injury in the Intensive Care Unit. Palliative Care in Nephrology, 197.
Ramer, S. J., & Scherer, J. S. (2020). Moving the science of patient-reported outcome measures forward: measuring fatigue in hemodialysis patients. Clinical Journal of the American Society of Nephrology, 15(11), 1546-1548.
2019 and earlier
Corbett, C. M. (2018). Effecting Palliative Care for Patients with Chronic Kidney Disease by Increasing Provider Knowledge. Nephrology Nursing Journal, 45(6).
Saeed, F., Lupu, D., & Moss, A. H. (2019). The donut or the hole? Prioritizing patient and caregiver values in the delivery of high-quality medical management without dialysis. American Journal of Kidney Diseases, 73(2), 153-155.
Anderson, E., Aldous, A., & Lupu, D. (2018). Make your wishes about you (MY WAY): using motivational interviewing to foster advance care planning for patients with chronic kidney disease. Nephrology Nursing Journal, 45(5), 411-422.
Lam, D. Y., Scherer, J. S., Brown, M., Grubbs, V., & Schell, J. O. (2019). A conceptual framework of palliative care across the continuum of advanced kidney disease. Clinical Journal of the American Society of Nephrology, 14(4), 635-641.
Tamura, M. K., O’Hare, A. M., Lin, E., Holdsworth, L. M., Malcolm, E., & Moss, A. H. (2018). Palliative care disincentives in CKD: changing policy to improve CKD care. American Journal of Kidney Diseases, 71(6), 866-873.
Russell, J. S., Lupu, D., Seliger, S., & Moss, A. H. (2016). Providing supportive care to patients with kidney disease. Nephrology News & Issues, 30(5), 28-30.
Lupu, D., Moss, A., Schell, J., Schueller, K., & Cheung, K. (2018). Where Palliative Care and Nephrology Meet—Complex Decisions in the Older CKD Patient (TH339). Journal of Pain and Symptom Management, 55(2), 578.
Lupu, D., Moss, A., & Moore, A. (2019). Let All Flowers Bloom: Encouraging Innovation in Kidney Supportive Care through Partnerships with ESCOs—The Pathways Project (FR405). Journal of Pain and Symptom Management, 57(2), 401-402.
Scherer, J. S., Wright, R., Blaum, C. S., & Wall, S. P. (2018). Building an outpatient kidney palliative care clinical program. Journal of pain and symptom management, 55(1), 108-116.
Bansal, A. D., Leonberg-Yoo, A., Schell, J. O., Scherer, J. S., & Jones, C. A. (2018). Ten tips nephrologists wish the palliative care team knew about caring for patients with kidney disease. Journal of palliative medicine, 21(4), 546-551.